PSC is unpredictable. Every sufferer experiences different symptoms which progress at different rates, some rapidly, some more slowly. In progressed cases Liver transplantation can often be their last chance.
Here in the UK there was a recent media campaign “from the heart” which promoted organ donation. As part of that campaign there were two videos about PSC suffers both of whose families happen to have also been supported by my chosen charity PSC Support. Take a moment to hear their stories – they’re both an inspiration and motivation to me.
Craig – a young family man who recently had a liver transplant.
Jade – a young women whose PSC has progressed to the point where she needs a new liver. Jade’s father was an organ donor after his unexpected death so her family has a unique perspective of both sides the subject.
Would you accept a donated organ if your life depend on it, or if a family member’s did? I suspect the vast majority of us would say yes – I would! Signing up to be an organ donor doesn’t mean you any more likely to die. In fact you’re more likely to need a donor organ than to donate one.
When Martine was diagnosed with PSC and I began to educate myself about the condition I made sure I signed up to be an organ donor in the event of my death. I’ve met many people who have gone through a liver transplant and the wonderful gift it is for them and their loved ones. Please consider registering to be an organ donor too and make your wishes known to your family.